toady part two

so, to finish my last post regarding Zoe's cardiology diagnosis...we were devastated...what the pediatrician told Brant was, "I usually do not tell parents that this is a concern, but I feel you need to know." great...
but, now trying to get in to see a pediatric cardiologist takes time and it took several weeks...
May 8th, a Thursday...long wait while the doctor was doing the echo, kept taking longer and longer when other people had been in and out...the doctor finally asks, does anyone in the family have........................? and Sam started crying...I made her leave the room so Zoe would not see her cry and I made Sam go get her dad out of the car...we needed him for moral support...
now, the rest is history...
it has been a long (almost 2 years) and we still really don't have answers...this little girl keeps getting sick and sometimes when she gets sick, she gets really really sick...
I posted just the other day on how we changed pediatricians and hopefully now, will start being able to see the light at the end of the tunnel...
her new meds seem to be working in just a couple of days and she likes taking them...

so, to finish this post of Zoe up:

Zoe is our precious, sweet, fun and fiesty 9 year old...she can be such fun to be around....she is great company...she and I love to take walks (me on my scooter and since she learned to ride a bike, that's what she rides) at night and we go all over...our favorite is to ride up to Rite Aid in the shopping center and get ice cream...she also loves the fish tacos in the same center...
she is a very caring person and when she loves you, it is with a very deep passion...

She was a total miracle, God was watching and saw how much we needed this little miracle...most times when I think about it, I still cannot believe it...I had waited for years for a little girl...and right from the first few minutes of life, that little face could melt my heart and it still does...sometimes I look intently at her and that face with those big brown eyes and those pixie freckles, it almost takes my breath away...

I absolutely never knew how special a grand daughter could be...they are so important to you, they are the reason you get up each morning, the reason you live each day looking forward to seeing them...words cannot really express the totality of how I feel for her...I wish more than anything I could take this pain for her, I ache terribly for her and the future of problems that she will have for the rest of her life...

two of my kids when they were little were so blond with blue eyes and Tim was the one who got his dad's Italian dna with the brown hair and brown eyes...and when they were little I always wondered what a little girl of mine would look like with Tim's colorings...Zoe is IT...she is Tim's mini me and the funny thing is that she is like him in so many other ways too...she loves comic books (like him) she loves movies with a passion (like him)...every week she will look up on the computer the upcoming movies for the week and what they are rated...she and Tim love doing things together in fact, later this year Tim plans on taking her to Tokyo with him...how cool is that???